
All of our currently recruiting studies are part of a community-engaged or Community Based Participatory Research (CBPR) model.

Parker KN, Alexander SW, Jacola LM, Buff KA, Hwang K, Hashemi E, Stoddard G, Jibb LA. Characterizing Parental Concerns About Lasting Impacts of Treatment in Children With B-Acute Lymphoblastic Leukemia. Pediatr Blood Cancer. 2026 Jan 23:e70156. doi: 10.1002/1545-5017.70156. Epub ahead of print. PMID: 41574635.
Salama R, Shuck A, Lu Z, Buff K, Roesler MA, Paciente C, Spector LG. Patient and Family Demographics in the Momcology Pediatric Cancer Patient Advocacy Organization. Pediatr Blood Cancer. 2026 Jan;73(1):e32122. doi: 10.1002/pbc.32122. Epub 2025 Oct 28. PMID: 41157858.
Canter, K. S., Kazak, A. E., Koskela-Staples, N., Scialla, M. A., Buff, K., Pariseau, E., Sardi-Brown, V. A., Tager, J. B., & Wiener, L. (2025). Clinician and Parent Perspectives on Essential Psychosocial Care in Pediatric Cancer. JAMA pediatrics, 10.1001/jamapediatrics.2025.3671. https://doi.org/10.1001/jamapediatrics.2025.3671
Parker K, Alexander SW, Jacola LM, Buff K, Hwang K, Hashemi E, Stoddard G, Jibb L. Characterizing Difficulty and Life Disruption During B-Acute Lymphoblastic Leukemia Therapy From the Perspective of Parents: A Survey Study. Pediatric Blood & Cancer (2025): e32041. https://doi.org/10.1002/pbc.32041
Kazak AE, Scialla MA, Canter KS, Brown VS, Buff K, Arasteh K, Pariseau E, Sandler E, Wiener L. Delivering Care Consistent With the Psychosocial Standards—Provider Report: Implementing the Standards Together—Engaging Parents and Providers in Psychosocial Care (iSTEPPP) Study. Pediatric Blood & Cancer (2025): e31959. https://doi.org/10.1002/pbc.31959
Scialla MA, Wiener L, Canter KS, Brown VS, Buff K, Arasteh K, Pariseau E, Sandler E, Kazak AE. Benchmarks for Psychosocial Staffing in Pediatric Oncology: Implementing the Standards Together-Engaging Parents and Providers in Psychosocial Care (iSTEPPP) Study. Pediatr Blood Cancer. 2025 Jun;72(6):e31676. doi: 10.1002/pbc.31676. Epub 2025 Mar 27. PMID: 40150854.
Wiener L, Buff K, Canter K, Pariseau E, Scialla MA, Brown VS, Kazak AE. Partnership With Patient Advocacy Organizations Improves Research Recruitment. Pediatr Blood Cancer. 2025 Mar;72(3):e31474. doi: 10.1002/pbc.31474. Epub 2024 Dec 15. PMID: 39676124.
Perez Ramirez A, McDonnell GA, Buff K, Pierce J, Wohlheiter K, Guarino S, Kazak AE, Alderfer MA. Attending to Adolescents’ Well-Being During Their Transition off Cancer Treatment: Perspectives from a Nationwide Crowdsourcing Study. J Adolesc Young Adult Oncol. 2025 Feb 20. doi: 10.1089/jayao.2024.0101. Epub ahead of print. PMID: 39976921.
Skeens MA, Hill K, Olsavsky A, Buff K, Stevens J, Akard TF, Shah N, Gerhardt CA. Factors affecting COVID-19 vaccine hesitancy in parents of children with cancer. Pediatr Blood Cancer. 2022 Jun;69(6):e29707. doi: 10.1002/pbc.29707. Epub 2022 Apr 5. PMID: 35384278; PMCID: PMC9088330.
Skeens MA, Ralph JE, Olsavsky AL, Buff K, Shah N, Akard TF, Gerhardt CA. The Impact of the COVID-19 Pandemic on the Quality of Life of Children With Cancer. J Pediatr Hematol Oncol Nurs. 2024 Mar-Apr;41(2):85-95. doi: 10.1177/27527530231194592. Epub 2023 Nov 27. PMID: 38008953.
Sutherland-Foggio MS, Stanek CJ, Buff K, Nahata L, Foster-Akard T, Gerhardt CA, Skeens MA. The experiences of families of children with cancer during the COVID-19 pandemic: A qualitative exploration. Palliat Support Care. 2024 Apr;22(2):281-288. doi: 10.1017/S1478951523001098. PMID: 37559193.
Gumy JM, Silverstein A, Kaye EC, Caniza MA, Homsi MR, Pritchard-Jones K, Bate JM; St Jude/SIOP Parent and Carer Advisory Group. Global caregiver concerns of SARS-CoV-2 vaccination in children with cancer: a cross-sectional mixed-methods study. Pediatr Hematol Oncol. 2023 May;40(4):341-351. doi: 10.1080/08880018.2022.2101724. Epub 2022 Jul 25. PMID: 35876691.
Canter, K.S., Wiener, L., Koskela-Staples, N., Tager, J., Scialla, M., Pariseau, E., Buff, K., Sardi Brown, V., & Kazak, A.E. (2025, October). Parents & Providers Share Which Psychosocial Standards Matter Most: Results From The iSTEPPP Study. Presented at the 57th Congress of the International Society of Paediatric Oncology, Amsterdam, The Netherlands.
Scialla, M., Wiener, L., Canter, K., Sardi-Brown, V., Buff, K., Arasteh, K., Pariseau, E., Sandler, E., & Kazak, A. Delivery of care consistent with the Psychosocial Standards in pediatric cancer in the United States: The iSTEPPP study. Presented at the 57th Congress of the International Society of Paediatric Oncology, Amsterdam, The Netherlands.
Parker, K., Alexander, S., Jacola, L., Buff, K., Hwang, K., Kupferman, R*., Hashemi, E., Jibb, L. Characterizing difficulty associated with side effects and burden of care across the phases of B-ALL therapy: a survey study assessing the perspective of parents. Poster presented at the International Society of Pediatric Oncology (SIOP) 2025 annual meeting. Amsterdam, Netherlands.
Jibb, L., Buff, K., Alexander, S., Jacola, L., Hwang, K., Hashemi ,E., Parker, K. Setting a new research agenda in pediatric Acute Lymphoblastic Leukemia: A priority-setting partnership with parents. Poster presented at the International Society of Pediatric Oncology (SIOP) 2025 annual meeting. Amsterdam, Netherlands
Parker K, Alexander S, Jacola L, Buff K, Hwang K, Hashemi E, Jibb L.(2025, May). Parental concerns for lasting treatment impacts in children with B-cell acute lymphoblastic leukemia. American Society of Pediatric Hematology/Oncology conference, Louisville, Kentucky.
Koskela-Staples, N., Wiener, L., Kazak, A., Buff, K., Pariseau, E., Scialla, M., Sardi-Brown, V., Tager, J., & Canter, K. (2025, March). Barriers to implementation of the Psychosocial Standards of Care: Provider and caregiver perspectives. Poster, American Psychosocial Oncology Society Annual Conference. Pittsburgh, Pennsylvania.
Perez Ramirez, A., McDonnell, G.A., Buff, K., Kazak, A.E., & Alderfer, M.A. (2024, December). Attending to adolescents’ wellbeing during their transition off cancer treatment: A United States-based crowdsourcing study. [e-Poster Presentation] 6th Global Adolescent and Young Adult Cancer Congress, Melbourne, Australia.
Buff, K., Paciente, C., Lu, Z., Roesler, M., Williams, L., Spector, L. (2024, October). Establishment of a Pediatric Cancer Database Through an Advocacy Organization to Increase Patient Family Engagement in Research Objectives. Oral Presentation, International Society of Pediatric Oncology, Honolulu, Hawaii.
Parker, K., Alexander, S., Jackal, L., Buff, K., Hwang, K., Hashemi, E., Jibb, L.(2024, October) Characterizing Difficulty and Life Disruption During B-Cell Acute Lymphoblastic Leukemia Therapy from the Perspective of Parents. Oral Presentation, International Society of Pediatric Oncology, Honolulu, Hawaii.
Parker, K, Alexander S, Jacola L, Buff K, Hwang K, Hashemi E, Jibb L. (2024, September). Patient Lived Experiences of children and adolescents with ALL. Children’s Oncology Group Fall Meeting ALL Outcomes, Toxicity and Disparities Breakout.
Parker, K, Alexander S, Jacola L, Buff K, Hwang K, Hashemi E, Jibb L.(2024, September). Stakeholder Informed Priority Setting for Pediatric ALL Research. Children’s Oncology Group Fall Meeting Acute Lymphoblastic Leukemia Retreat.
Parker, K, Alexander S, Jacola L, Buff K, Hwang K, Hashemi E, Jibb L.(2024, September). The Patient/Parent Experience with Nausea/Vomiting in Children with B-ALL. Children’s Oncology Group Fall Meeting CCL Chemotherapy Induced Nausea and Vomiting Session.
Wiener, L., Kazak, A., Canter, K., Scialla, M., Pariseau, E., Arasteh, K., Brown, V.S., & Buff, K. (2024, April). Implementing the Standards Together: Engaging Parents and Providers in Psychosocial Care (iSTEPPP). Presentation, Association of Pediatric Oncology Social Workers Annual Meeting, Chicago, IL.
Skeens, M., Buff, K.(2022, October). Building Effective Partnerships in Nursing Practice and Research: Patient Advocacy Organizations and Nurses Supporting Each Other For Best Outcomes. Oral Presentation, Association of Pediatric Oncology Nurses, Palm Beach, Florida.
McDonnell, G., Buff, K. (2021, March). Methods to Recruit a Diverse Sample in Pediatric Psycho-Oncology Research. Oral Presentation, Society of Pediatric Psychology Annual Conference, Virtual.
Barakat, L., Matz, M., Paciente, C., Steele, A., Buff, K. (2019, October). Development and Evaluation of an Outpatient Support Group Intervention for Caregivers of Children with Cancer: A Cancer Center Psychosocial Services-Community-Based Partner Collaboration. Poster, International Society of Pediatric Oncology, Lyon, France.


The half-day meeting followed the FDA model for externally-led PFDD meetings and featured a series of facilitated panel and audience discussions, and a webinar with live polling focused on providing the FDA and other stakeholders with patient views on burden of chemotherapy induced hearing loss, current and potential future treatments, a risk-benefit assessment, and clinical trials.

2022 Rare Disease Day Interview by Lumanity

2021 Interview with Cat Paciente from Momcology

2020 A Community Spotlight Interview by Facebook