Partnering with Momcology on Research Initiatives
Momcology follows a Community-Based Participatory Research model in patient engaged projects. Access to the community is a precious resource that should always be treated with the care and intention it deserves during the full scope of any research project. Investigators should understand that Momcology serves the important role of gatekeeper and facilitator to the community to help ensure the most benefit from true community-engaged work. We do not blindly post studies, please do not ask us to. We strongly believe in equitable partnerships with research teams that will benefit the needs of the community through increasing co-learning and creating direct and needed care interventions for childhood cancer families. Momcology is committed to working with research partners who value and respect all aspects of our mission and who have a passion for involving community partnerships in their portfolio of work.
What Is Community-Based Participatory Research (CBPR)?
CBPR is a collaborative and equitable approach to research that is carried out in partnership between researchers and the community. Both researchers and the community have an equal share of power, decision-making, and responsibility for the research being done.
A CBPR approach aims to increase knowledge and understanding about particular issues, and then integrate the new knowledge into interventions, programs, or policies that benefit a community.
Link redirects to Community Engaged Research with Community Based Agencies & Organizations: A Resource Manual for Researchers | USCF
Why CBPR is Important to Momcology & Our Research Partners
Enhances community-relevant research questions
Strengthens interventions
Enhances reliability/validity of measurement tools
Improves response rates/recruitment and retention
Converts knowledge generation to deliverable action
Increases accurate interpretations of findings
Increases translation of research into sustainable change
Facilitates effective dissemination of findings
Increases research trust
Ongoing opportunities for co-learning
CBPR Questions Before Engaging with
Momcology
- What interests you about the population we serve?
- What do you want to accomplish?
- What makes our organization a good match for this project?
- How will this project impact our mission and work?
- What resources might be available to support our participation?
- Is your idea funded yet? If not, what steps are necessary to obtain funding? How can we participate?
- How will this research project be staffed and will it be paid for by a research grant?
- How will we know if the research is having the desired impact?
- What will be the direct benefits of the research to our community? How will it be shared back to the community with meaning?
“It is not about getting into the community to find research topics and research subjects, it is about getting the community engaged in the whole research process so that the research is designed and implemented by and for the community.”
Next Steps
Contact Us
Review & Consult
Partner & Engage
If you are interested in partnering with Momcology, please contact us during study development. We are only able to take a limited number of CBPR projects per year and continue to effectively run the support arms of our mission. Capacity and resource management is a critical component to our success together. Once a CBPR partnership is established, a Momcology representative will serve on the research team and fully participate as a community-based partner and patient advocate on the study. We look forward to working with you and turning ideas and engagement into deliverable action for patients and families.