Return of Results
It is possible that your child was enrolled in a clinical trial as part of their treatment. Clinical trials are a type of research that studies new treatments and evaluates their effects on human health outcomes. People volunteer to take part in clinical trials to test medical interventions and help improve outcomes. Clinical trials are carefully designed, reviewed, and completed, and need to be approved before they can start.
Research studies may take a long time to finish. Even after the last patient has been enrolled, it can take a year or more for the results to be released. During that time, work is being done to ensure that the results are accurate and that they can answer the main question of the study. Children’s Oncology Group has developed a resource for families to find the results of clinical trials their child may have participated in.
Learn more about Return of Results and how to stay updated after your child’s treatment is over
FAQs Return of Results
The research study may take many years to finish enrolling enough participants to answer the main research questions. If you register your email address linked with the study of interest on the website, you will be automatically notified when the result summary is posted.
Note that sometimes further results will become available with time. You will be notified each time a revised summary is posted. This is why it is important to update your email address if it changes after you register to be notified.
Only summaries of COG research studies will be posted on the website. Individual results are never posted. If you wish to discuss more personal information, please discuss this with your pediatric oncology team.
The result summaries are put together by the study team. The summary is reviewed by a member of the Patient Advocacy Committee, the Nursing Committee, a statistician, and COG and ROR Committee leadership before being posted on the website. This is to make sure the summaries are readable and accurate.
We urge you to speak with your pediatric oncology team if you have further questions about the results of the study. We recommend not contacting the study chair, as they do not know you or your child in terms of putting your health care needs in context.